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Breast cancer advocacy programme

Representatives of breast cancer patient advocacy groups are warmly invited to participate in ABC4 and actively contribute to the scientific programme and consensus session.
Furthermore, in collaboration with the Breast Cancer Patient Advocacy Committee, including several leading breast cancer patient advocacy groups worldwide, specific additional patient advocacy sessions have been scheduled.

Breast Cancer Patient Advocacy Committee

Coordinator

Fatima Cardoso, Breast Unit, Champalimaud Cancer Center, Lisbon, PT

Bertha Aguilar Lopez, ULACCAM, Mexico City, MX
Anna Cabanes, Susan G. Komen, Washington, US
Maria João Cardoso, MamaHelp Association, Lisbon, PT
Dian “CJ” M. Corneliussen-James, METAvivor Research and Support, Annapolis, US
Renate Haidinger, Brustkrebs Deutschland e.V., Munich, DE
Danni Manzi, Breast Cancer Care, London, UK
Musa Mayer, Metastatic Breast Cancer Alliance, New York, US
Shirley A. Mertz, Metastatic Breast Cancer Network US, Inverness, US
Gertrude Nakigudde, Uganda Women's Cancer Support Organisation, Kampala, UG
Evi Papadopoulos, Europa Donna, Nicosia, CY
Danielle Spence, Breast Cancer Network Australia, Camberwell, AU

 

breast cancer care Breast Cancer Network Australia Brustkrebs Deutschland e. V. Europa Donna
Mama Help Metastatic Breast Cancer Alliance Metastatic Breast Cancer Network MetaVivor
Susan G. Komen UWOCASO ULACCAM  

 

THURSDAY, 2 NOVEMBER

9:00 Patient advocacy session: Direct patient involvement in ABC research
(Chairs: Bertha Aguilar Lopez, MX - Anna Cabanes, US - Shirley A. Mertz, US)
(Panellists: Bertha Aguilar Lopez, MX - Matthew J. Ellis, US - Shirley A. Mertz, US Danielle Spence AU)    
11:00      

Patient advocacy session: Survivorship 101: Work, finances, home and emotional support (Chairs: Danni Manzi, UK - Gertrude Nakigudde, UG and Evi Papadopoulos, CY)• Work means more than money (Evi Papadopoulos, CY)
• Discusssion 
• The support of the other side
• Discussion
• How can I swim in a storm (Gertrude Nakigudde, UG)
• Discusssion

18:00      Patient advocacy session: Registries, databases and statistical modelling: making MBC count (Chairs: Musa Mayer, US and Danielle Spence, AU)
• Introduction and Australia STAR project (Danielle Spence, AU)
• Estimation of the Number of Women Living with Metastatic Breast Cancer in the United States (Musa Mayer, US)
• The new German Cancer Registry (Norbert Marschner, DE)
• Breast Cancer Care UK (Danni Manzi, UK)
• Discussion

FRIDAY, 3 NOVEMBER

18:00       Patient advocacy session: ABC Advocacy: Managing side effects, sexual issues and fertility  (Chairs: Dian "CJ" M. Corneliussen-James, US and Renate Haidinger, DE)
• How can physicians help to avoid or treat side effects? (Christoph Thomssen, DE)
• How can patients help to avoid or treat side effects? (Renate Haidinger, DE)
• Discussion
• Intimacy - Starting Anew (Dian “CJ” M. Corneliussen-James, US)
• Fertility -The Joys and the Risks (Dian “CJ” M. Corneliussen-James, US)
• Discussion

SATURDAY, 4 NOVEMBER

11:00 Report from ABC Patient Advocacy Committee (Speaker to be confirmed)

 

Chance to meet SPARC MBC Challenge awardees

Thursday 2 November
12:40, Location: Room 1.06


The SPARC Metastatic Breast Cancer Challenge, run by UICC and supported by a grant from Pfizer Oncology, is a first of its kind initiative to support organizations around the world address the specific needs of women with metastatic breast cancer. UICC and Pfizer invite ABC4 attendees to meet the 2015 and 2017 SPARC awardees to learn more about their projects.