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Breast cancer advocacy programme

Representatives of breast cancer patient advocacy groups are warmly invited to participate in ABC5 and actively contribute to the scientific programme and consensus session.
Furthermore, in collaboration with several leading breast cancer patient advocacy groups worldwide, specific additional patient advocacy sessions will be scheduled.

Breast Cancer Patient Advocacy Committee

Coordinator

Fatima Cardoso, ABC Global Alliance, Lisbon, PT

Bertha Aguilar Lopez, Salvati, Mexico City, MX
Karen Benn, Europa Donna - the European Breast Cancer Coalition, Milan, IT
Anna Cabanes, Susan G. Komen, Washington, US
Maria João Cardoso, Mama Help, Lisbon, PT
Renate Haidinger, Brustkrebs Deutschland e.V., Munich, DE
Ranjit Kaur, Breast Cancer Welfare Association Malaysia, Petaling Jaya, MY
Shirley A. Mertz, Metastatic Breast Cancer Network, Inverness, US
Gertrude Nakigudde, Uganda Women's Cancer Support Organisation, Kampala, UG
Kirsten Pilatti, Breast Cancer Network Australia, Camberwell, AU
Catherine Priestley, Breast Cancer Care & Breast Cancer Now, London, UK
Shawna Rich-Ginsberg, Rethink Breast Cancer, Toronto, CA
 

breast cancer care Breast Cancer Network Australia
Brustkrebs Deutschland e. V. Europa Donna  Mama Help Metastatic Breast Cancer Network
Susan G. Komen UWOCASO


Patient Advocacy Programme

THURSDAY, 14 NOVEMBER 2019

9:00 Patient advocacy session: The do’s and don’ts of complementary medicine
(Chairs: Renate Haidinger, DE and Anna Cabanes, US)
• Complementary medicine: what helps and what doesn’t (Maria João Cardoso, PT)
• New drugs, different side effect: can complementary medicine help? (Christoph Thomssen, DE)
• The danger of being lost between two worlds (Renate Haidinger, DE)
• Panel discussion and Q&A (Moderated by the chairs)
11:00 Patient advocacy session: Having difficult conversations: Empowering patients and their families with tools and strategies of communication at end of life
(Chairs: Ranjit Kaur, MY, Catherine Priestley, UK and Shawna Rich-Ginsberg, CA)
• Accessing palliative care – Why the resistance? (Matti Aapro, CH)
• Navigating end of life conversations with family members and children (Luzia Travado, PT)
• Supporting decision making and advance care planning – A case study of two patients (2 MBC patients)
• Bereavement Support in the MBC Community (Shawna Rich-Ginsberg, CA)
• Discussion
18:00 Patient advocacy session: When the cancer becomes visible - living with skin metastases from breast cancer
(Chairs: Maria João Cardoso, PT, Bertha Aguilar Lopez, MX and Gertrude Nakigudde, UG)
• Skin Metastases: the extension of the problem (Maria-Joao Cardoso, PT)
• Do skin metastases have a different biology? (Joana Ribeiro, PT)
• Skin directed therapy: Electrochemotherapy, is it a real option? (Giuseppe Curigliano, IT)
• Skin directed therapy: Radiotherapy and topical therapy (Birgitte V. Offersen, DK)
• Taking care of malignant wound – what should be considered? (Christine B. Boers-Doets, NL)
• Panel discussion and Q & A (Moderated by the chairs)

FRIDAY, 15 NOVEMBER 2019

18:00 Patient advocacy session: Improving your communication skills: the floor is yours
(Chairs: Shirley A. Mertz, US and Kirsten Pilatti, AU)
• Doctors need to believe in miracles too: ensuring you understand therapeutic aims of treatment
   recommendations (Lesley Fallowfield, UK)
• Building communication skills in health professionals – the role that advocates can play (Fran Boyle, AU)
• The power of storytelling in advocating for change (Runcie C.W. Chidebe, NG - Shirley Mertz, US and
   Kirsten Pilatti, AU)
• Case Studies x 3
• Q&A session

SATURDAY, 16 NOVEMBER 2019

11:00 Report from ABC Patient Advocacy Committee (Shirley A. Mertz, US)